We hold 4-6 special events a year. The events are a great way to meet other families and make long lasting friendships! They are also a great way to get out together and have fun.  Follow the blog, get on the mailing list (email, or like the Facebook page ( to stay updated on […]

Living with SB

Joel iPhone pics 2011

This section features videos from the Spring 2010 activity, “Transition into Adulthood Begins in Infancy,” hosted by the Intermountain Spina Bifida Support Group and the Spina Bifida Clinic at Primary Children’s Medical Center. Parents and specialists guide you through transitions from birth through adulthood.



Resources to support individuals and families living with and working with Spina Bifida are many. What are you interested in? Utah Crucial Resources Utah Sports & Recreation Resources Online Resources


Recognized by the IRS as a non-profit, 501(c)(3) public-supported charity the Intermountain Spina Bifida Support Group functions to provide support to any families and individuals who live and work with Spina Bifida in Utah and in neighboring States that rely on Primary Children’s Medical Center in Salt Lake City.  Read More


Breakfast & Bowling 2016

We had another very well-attended event this past April! Thank you to all who participated. We love getting together.  Read More


Breakfast & Bowling – Great Turn-out!

Thank you to everyone for coming to our first activity of the year! It was great to have so many of you come out and participate. Our next activity will be local Mom’s Night Outs in Lehi, Salt Lake City and up North. Watch for dates on this coming soon.  Read More

Hill Aerospace Museum

It was great to see so many families at our activity!! Thank you to the Meyers family for giving us a tour of the museum! Everyone had a great time (despite the cold and windy weather outside!).  Read More