Events
Living with SB
This section features videos from the Spring 2010 activity, “Transition into Adulthood Begins in Infancy,” hosted by the Intermountain Spina Bifida Support Group and the Spina Bifida Clinic at Primary Children’s Medical Center. Parents and specialists guide you through transitions from birth through adulthood.
Resources
Resources to support individuals and families living with and working with Spina Bifida are many. What are you interested in? Utah Crucial Resources Utah Sports Resources Utah Recreational Resources Online Resources
About
Recognized by the IRS as a non-profit, 501(c)(3) public-supported charity the Intermountain Spina Bifida Support Group functions to provide support to any families and individuals who live and work with Spina Bifida in Utah and in neighboring States that rely on Primary Children’s Medical Center in Salt Lake City. Read More
Blog
Bowling for Breakfast!
Join us for our next activity! Any spina bifida families or individuals welcome to join us for this FREE event! This has been a very successful activity in the past. So come and have some fun! Bowling for Breakfast! Saturday, May 26, 2012 9:00am – 11:00am Jack and Jill Bowling 113 South 600 East, Lehi, UT Bring the whole family! The bowling alley is handicap accessible for all bowling. A light breakfast will be served from 9:00am – 10:00am. RSVP by Friday, May 25th to events@utahspinabifida.org...
Killpack Family Gets Approval From Insurance For Fetal Surgery!!
Thank you to all those who wrote emails and called EMI or commented on abc4′s website. Read/watch the amazing follow-up story to the Killpack Family’s fight with Educator’s Mutual. http://www.abc4.com/news/local/story/Family-beats-insurance-company-for-babys-surgery/wOjzArdLpkOJDxPVZmQnqQ.cspx One more news story on this on KUTV: http://kutv.com/news/top-stories/stories/vid_1126.shtml Read More
Help the Killpack Family
Some of you may know the Killpack family in our support group. They have three children including their son, Davey with Spina Bifida. Now they are expecting their fourth, a girl who also has SB. They have been pursuing fetal surgery and they left for Houston 11 days ago. In that time their insurance has denied the surgery twice. They got home yesterday and appeared on the news last night. The family only has until May 1st to get the surgery done. They are asking our support group to help...
