Breakfast & Bowling 2016

We had another very well-attended event this past April! Thank you to all who participated. We love getting together.

IMG_3327IMG_3316

Category: Blog, Events, Families · Tags:

Breakfast & Bowling – Great Turn-out!

IMG_4405Thank you to everyone for coming to our first activity of the year! It was great to have so many of you come out and participate. Our next activity will be local Mom’s Night Outs in Lehi, Salt Lake City and up North. Watch for dates on this coming soon.

Category: Blog, Events · Tags:

Hill Aerospace Museum

It was great to see so many families at our activity!! Thank you to the Meyers family for giving us a tour of the museum! Everyone had a great time (despite the cold and windy weather outside!).

P1080780P1080788P1080795P1080793P1080799P1080800P1080775

Category: Blog, Events, Families, Uncategorized · Tags:

Parents Expo at Shriners

photo-44

Register Now for Summer Camps at Camp K!

Camp Kostopulos Dream Foundation is dedicated to improving the quality of life for people with disabilities through recreation, education and growth experiences. Located up Emigration Canyon in Salt Lake City, we are lucky to have Camp K so close!

Camp K offers various residential, travel and day camps all summer long. Day camps are for ages 7-22. Travel camps are for adults and teens. Residential camps are for adults, teens, kids & youth (check the schedule for specific weeks that apply to age groups).

Go to www.campk.org to read camp flyers with descriptions of events as well as to view schedules.

CampK

CampK2

Family Activity: Hill Aerospace Museum

Come to our first activity of the year!

Hill Aerospace Museum

Come and see over 90 military aircraft, missiles, and aerospace vehicles! Take this opportunity to have some family fun and to get together with other families!!

Take Exit 338 off I-15 in Roy Utah. Enter the museum grounds through the gate (No special pass necessary).

Saturday, March 29th 12-2pm

We will provide a treat at the end of the activity. The museum is handicap accessible.

RSVP to events@utahspinabifida.org (let us know how many will be coming)

Hill aeronautics 1 Hill Aeronautics 2 Hill Aeronautics 3

Category: Blog, Events, Families · Tags:

Help a family with another international adoption

A family in our support group is working on an international adoption. Help out if you can!

Read their letter below:

Hello friends, my name is Shannon.

In 2012 I adopted a beautiful and vivacious little ladybug with Spina Bifida from Eastern Europe. She is a pure delight and the light of my life. My family is once again expanding thru the gift and miracle of adoption! We are adding two beautiful teenage girls to our family and we are both very excited!

For those of you who are unfamiliar with international adoption, it’s a long, tedious, and expensive process. Kiddos like my ladybug are placed in orphanages because of the social stigma of having special needs. Many are locked away and forgotten in mental institutions.

Those of you who have met my ladybug, know she is far from needing to be in any kind of institution! We are now ready to add sisters to our family!

We chose international adoption because for those children overseas, it’s truly a matter of life and death. Teenagers are put on the street at 16 with little to no education, a very small cash stipend, and no place to go. Most of the girls will end up as prostitutes in an attempt to support themselves, which usually ends in early death. My two girls are 14 years old. Their future is grim.

Adoption has touched my life in ways that are indescribable. You cannot go through this process without being changed. Though adoption is not for everyone, it is possible to help a child by helping the family get these kids home. I’m doing a shoe drive to help fund this adoption. We need 15,000 pair of used pairs of shoes. These shoes go to other children who need them. Will you find it in your heart to help me bring these two girls home by donating your old pairs of shoes?

Love and light, Shannon

1189_001

 

Category: Blog, Financial Aid, Fundraising · Tags:

The Adaptive Experience Kickoff

Screen-Shot-2014-02-13-at-9.06.33-AMThere is a great activity happening in Provo this weekend! It’s called The Adaptive Experience Kickoff. Click on the link below to learn more. We hope that lots of our families can come.

http://provomayor.com/2014/02/14/provos-adaptive-experience-kickoff/

Wheelchair Tennis Clinic in Park City for All Ages!

2014_PCMARC_WheelchairClinicSeries_FLYER_010114_reduced

Wheelchair Tennis – National Camp (here in SLC) for ages 12 and up

Tennis Flyer 2014