Fall Bowling Party in Review

Our bowling activity was a lot of fun! Thank you to all who attended. We look forward to seeing you all next year!!









Category: Blog, Events, Families, Recreation · Tags:

1st Annual Disability Awareness Fundraiser Wheelchair Basketball Game

Support Utah’s National Jr. Wheelchair Basketball Team!! Attend their fundraiser on November 18th, 2013. See info. below.

Darts Defending Disabilities

Category: Blog, Events, Fundraising, Wheelchairs · Tags:

Upcoming Activity: Fall Family Bowling Party

Join us for a fun (and free!) morning of bowling and breakfast!!

When: Saturday, November 16th, 2013

Time: 9:00am – 11:00am

Where: Jack and Jill Bowling, 113 South 600 East, Lehi Utah, just off the freeway (very easy to get to).

Directions: Southbound on I-15 take the Lehi Main street exit 279.  Turn right at the light onto main street, drive a block or two and turn left on 600 East, the bowling alley is on your left.

Northbound on I-15 take the Lehi Main street exit 279.  Turn Left at the light onto Main Street, drive a block or two and turn left on 600 East, the bowling alley is on your left.

The bowling alley is handicap accessible for all bowling.  Please come and have a fun morning of bowling before the holidays begin.  A light breakfast will be served from 9:00am-10:00am, with muffins, fruit, Danishes, juice, milk, etc.

Please RSVP by Friday, November 15th to events@utahspinabifida.org (let us know your name and how many will be coming) or call 801-214-8070.

We look forward to seeing you there!!


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Salt Lake County Youth Wheelchair Basketball

This program is great because kids can come as young as 3 years old! Take advantage of this great opportunity to get your young child involved in wheelchair sports!

2013 Youth Wheelchair Basketball Flyer


Wheelchair Basketball in Clearfield

The wheelchair basketball program in Clearfield offers a great basketball experience. The program is for kids in 4th grade and up. They meet for 2 hours on Saturday afternoons. Participants practice one hour, then scrimmage the other hour. Participants receive a Jr. Jazz jersey and a ticket to see a Utah Jazz game.

wheelchair flier 2013 (2)


Primary Children’s Hospital is offering SIBS Day: A Workshop for Super Important Brothers and Sisters.

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Saturday, November 16, 2013


3rd Floor, Primary Children’s Outpatient Services at the Riverton Campus

#3 Yellow Entrance, Northwest Corner of Campus

“Join us for SIBS Day – a workshop for brothers and sisters ages 5-17 who have a sibling with a chronic medical condition or disability. This workshop provides a place where children can express themselves, learn from others and explore new ways to cope.

Early Bird Tuition is $5 (before 10/28/13). Regular Tuition is $10. Space is limited and pre-registration is required. Registration closes 11/08/13 at 5pm. ”

Register online at: www.primarychildrens.org/sibs


Utah County New Adaptive Sports Program – Wheelchair Basketball

Wheelchair Basketball Flyer10-13

The Provo Rec Center is starting an adaptive sports program!

Wheelchair Basketball Flyer10-13

Meet Morgan

Morgan Mudrow was born April 1, 2013. He is our third child with an older sister and brother that adore him so much!! We found that Morgan possibly had spinabifida while dropping off a tree to the festival of trees (to benefit primary children’s.) Little did we know we would rely on their expertise so many times in the near future. Born 5 weeks early we welcomed Morgan with tears of joy and anticipation-only Morgan did not great us with a cry. He had to be immediately resusitated and we were later told he has paralyzed vocal cords-they don’t know if it’s due to the hydrocephelus or just something he was born with-he struggled to breath with the striders he had. After a long two months in the NICU my husband and I were approached with the decission to have Morgan trached or not. We were told that was probably the only way he’d come home to us, so with all the faith we could muster we agreed. Morgan came home to Ogden, UT a week shy of three months in the NICU. He is thriving now and is our mighty miracle. We can’t wait to see what his future holds! We will embrace every minute we can have with him.





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Agenda for the SBA Education Day held in Salt Lake

Summer Swim Party 2013 in Review

Our Summer Swim Party turned out to be a lot of fun. We were so happy to see so many families there! Between playing on the playground, the picnicking, the visiting, the baseball and the swimming there was something for everyone to enjoy. We look forward to seeing you at our next event (watch for our Halloween activity, Bowling in Lehi at the end of October!).


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