Social Security Benefits for people with spina bifida

The following is a guest post/article written by Ram Meyyappan. This is a great introduction to the kinds of Social Security Benefits that are available to people with Spina Bifida. Spina Bifida and Social Security Disability Benefits If you suffer from spina bifida, you know how debilitating the disease can be. There is no cure […]

Summer Party 2012 Review

Over 200 Intermountain Spina Bifida Support Group members attended the annual summer party on Saturday, August 18, 2012 at the Gene Fullmer Recreation Center in West Jordan. Jeff Burley of Salt Lake County Adaptive Recreation, the event’s primary sponsor, arranged for: catering from Joe Morley’s BBQ and Coca-Cola; wheelchair tennis with Coach Dean Oba of […]

Walk and Roll Activity in Review

We had a great turn out for our Walk and Roll Activity and Picnic.  Thank you to all who were able to make it!  A special thanks goes to Jadon Scholes, a scout who put the entire event together for his Eagle Project.  Watch for Local Mom’s Nights coming in October and Bowling coming in […]

A Great Opportunity to try Kindermusik

Read about the benefits of Kindermusik in a previous post. The Discovery Gateway is offering a unique opportunity to participate in Kindermusik.  Normally you can attend a trial class for free, but to participate, you have to pay a good amount of money for a full semester (4 months).  This is the first time I […]

Great Ideas from Moms Who Know

Our Mom’s Night Out evenings turned out to be really fun and helpful! Take a look at some of the great ideas shared at our Mom’s Nights. Home UTI tests: One mom does her own UTI tests at home.  Her daughter regularly gets UTI’s and she found that being able to test her urine at […]

38th Annual SBA National Conference

Please join the Spina Bifida Association (SBA) for the 38th National Conference to be held at the Disneyland Hotel (Anaheim, CA) from June 26 – June 29, 2011. Children and adults with Spina Bifida, their families, physicians, nurses, and other clinicians have the unique opportunity to gain information on the latest medical care and network […]

Shriners Hospital – An Excellent Resource for Children with Spina Bifida

There are only 22 Shriners Hospitals in the world and Salt Lake City is blessed to be home to one of them. Shriners Hospitals are dedicated to give specialty care to children with needs in Orthopedics, Burn Care, Spinal Chord Injury and Cleft Lip and Cleft Palate. The care given is free to families. Income […]

PCMC Coordinators – transitions

Many Intermountain Spina Bifida Support Group members visit the Spina Bifida Clinic at Primary Children’s Medical Center in Salt Lake City. PCMC’s liason with the ISB support group, Tamara Atwood, will be leaving in February 2011 and Nina Goldstein will be taking her place. During the transition, they offered up for blog readers a few […]

Kindermusik

A Great Opportunity to Encourage and Enjoy Your Child’s Development Have you heard about Kindermusik?  Kindermusik is a music and movement program for infants, toddlers, and preschoolers, accompanied by a parent or caregiver. From the kindermusik website: In class, you play, listen, sing, move, dance, and giggle with your child. It’s fun. Lots of fun. But […]

Spina Bifida University

It’s National Spina Bifida Awareness Month!  During this special month the *Spina Bifida Association website (www.sbaa.org) is offering FREE online seminars on a variety of topics.  This program is called SBU or Spina Bifida Univerisity.  Scroll down to the bottom of the page to find out how to participate. The following seminars on Education and […]