Meet Sue Thompson

The following is an interview with Sue Thompson, a member of our Spina Bifida community.  She is an inspiration and her interview is full of great insights. Q: Tell us about yourself. A: I was born in Pocatello, Idaho in 1949.  Within 2 weeks I was brought to SLC Primary Children’s Hospital and assigned to […]

Swim Party in Review

Thank you to all who attended our annual swim party! The evening turned out to be a success despite messy weather.  The night began with dinner and visiting.  Paula Peterson and Michael Workman from PCMC both were in attendance.  Following dinner, the sports wheelchairs came out!  Adults, teens and children took turns trying out the […]

Living with Spina Bifida section

One of the sections of is entitled, “Living with Spina Bifida.” This section features videos from the Spring 2010 activity, “Transition into Adulthood Begins in Infancy,” hosted by the Intermountain Spina Bifida Support Group and the Spina Bifida Clinic at Primary Children’s Medical Center. Parents and specialists guide you through transitions from birth through adulthood. […]

Feeding Issues in Young Children

By Joel Manwill, Occupational Therapist Frequently, babies and children with a history of reflux or GERD or other gastro-intestinal issues begin to have food and/or feeding aversions. The severity of these aversions can range from being a little picky sometimes to downright refusing all foods and requiring nourishment via feeding tubes. The following information is […]

Three Helps for Eating Delays

Some children with Spina Bifida can experience struggles with eating.  Our daughter is eating quite well now, but she went through a long period where she could not tolerate most kinds of foods.  I remember being concerned at her first birthday party about letting her taste the icing on her cake, knowing she could possibly […]

How do you make cathing more convenient?

I have two daughters who need to be catheterized four times a day.  One obviously has spina bifida.  The other has had serious enough bladder problems to have a stoma placed (we cath through her belly button).  I would love some ideas on how to make cathing more convenient, especially on the go.  Please respond […]

Meet Jacob

Wow. Jacob is our little sweetheart. He is almost 21 months old and is child number three in our family.  (He has a 6 yr old sister, and 2 yr old brother.) We are so grateful to have him here! We found out that something was wrong with our baby when I was about 16 […]

Learning to Sit

Learning to sit …a process that requires so many parts of the body to work together. I never realized all that it takes to learn to sit up. For some it takes more time to learn to sit independently than others. For Emylie she began to sit without support around 15 months and mastered it by […]

Meet Emylie

Spina Bifida. Something I had heard of but really hadn’t until I was pregnant with my daughter Emylie. I was about 18weeks along when I found out that my baby might have Spina Bifida. When I first got the call from my doctor regarding my Maternal Serum Blood test results I immediately knew something was […]

Meet Lily

This is Lily. She was born with Spina Bifida. We found out she had spina bifida when I was five months pregnant during a routine ultrasound. She had hydrocephalus, the Arnold-Chiari Malformation, bilateral club feet and an opening in the spine that started at the level L1. She was born by c-section at the University […]