Summer Party 2012 Review

Over 200 Intermountain Spina Bifida Support Group members attended the annual summer party on Saturday, August 18, 2012 at the Gene Fullmer Recreation Center in West Jordan. Jeff Burley of Salt Lake County Adaptive Recreation, the event’s primary sponsor, arranged for: catering from Joe Morley’s BBQ and Coca-Cola; wheelchair tennis with Coach Dean Oba of […]

New SB Video Series – Children’s Hospital of Philadelphia

The Children’s Hospital of Philadelphia recently released a new Spina Bifida video series, covering the condition and the options expectant mothers have, including the breakthrough procedure that was part of the MOMS study. Click here to view the complete video series. Here is the hospital’s YouTube video which currently leads their Youtube channel.     […]

38th Annual SBA National Conference

Please join the Spina Bifida Association (SBA) for the 38th National Conference to be held at the Disneyland Hotel (Anaheim, CA) from June 26 – June 29, 2011. Children and adults with Spina Bifida, their families, physicians, nurses, and other clinicians have the unique opportunity to gain information on the latest medical care and network […]

Shriners Hospital – An Excellent Resource for Children with Spina Bifida

There are only 22 Shriners Hospitals in the world and Salt Lake City is blessed to be home to one of them. Shriners Hospitals are dedicated to give specialty care to children with needs in Orthopedics, Burn Care, Spinal Chord Injury and Cleft Lip and Cleft Palate. The care given is free to families. Income […]

PCMC Coordinators – transitions

Many Intermountain Spina Bifida Support Group members visit the Spina Bifida Clinic at Primary Children’s Medical Center in Salt Lake City. PCMC’s liason with the ISB support group, Tamara Atwood, will be leaving in February 2011 and Nina Goldstein will be taking her place. During the transition, they offered up for blog readers a few […]


A Great Opportunity to Encourage and Enjoy Your Child’s Development Have you heard about Kindermusik?  Kindermusik is a music and movement program for infants, toddlers, and preschoolers, accompanied by a parent or caregiver. From the kindermusik website: In class, you play, listen, sing, move, dance, and giggle with your child. It’s fun. Lots of fun. But […]

Spina Bifida University

It’s National Spina Bifida Awareness Month!  During this special month the *Spina Bifida Association website ( is offering FREE online seminars on a variety of topics.  This program is called SBU or Spina Bifida Univerisity.  Scroll down to the bottom of the page to find out how to participate. The following seminars on Education and […]

Meet Missy

The following is an interview with Cindy Cowley, Missy’s mother. Q: Tell us about Missy and your family. A: Jesse and I were married in 1999. We tried to have a baby for 6 long years. Finally our prayers were answered in August of 2005. We were going to have a baby. That December, through […]

Meet Sue Thompson

The following is an interview with Sue Thompson, a member of our Spina Bifida community.  She is an inspiration and her interview is full of great insights. Q: Tell us about yourself. A: I was born in Pocatello, Idaho in 1949.  Within 2 weeks I was brought to SLC Primary Children’s Hospital and assigned to […]

Swim Party in Review

Thank you to all who attended our annual swim party! The evening turned out to be a success despite messy weather.  The night began with dinner and visiting.  Paula Peterson and Michael Workman from PCMC both were in attendance.  Following dinner, the sports wheelchairs came out!  Adults, teens and children took turns trying out the […]