Primary Children’s to Host Spina Bifida Education Days

Saturday, October 5, 2013 – Save the date!! This year the Spina Bifida Association is hosting regional Spina Bifida Education Days in five locations throughout the United States. Primary Children’s Medical Center, in our own Salt Lake City will be one of those select locations!! The Intermountain Spina Bifida Support Group is working together with […]

Winter Event – Boondocks with Santa

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SB Adult Physical Activity Survey

Are you an adult with Spina Bifida between the ages 18-60? If so, researchers from Oregon State University invite you to participate in an online research study! We are interested in learning more about physical activity and adults with Spina Bifida. The study does not require a clinic visit and can be completed using a […]

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Zumba Benefit for Spina Bifida

Come join for a fun night of Zumba Saturday October 13, 6-730!!!!! $5 gets you 1.5 hours of Zumba and a raffle ticket for the chance to win awesome prizes! All the money made will be split between the Utah SB Chapter as well as Educational Materials to help educate families on the option of […]

Muffy Davis Wins Three Paralympic Golds in London

Those following the YouTube ParalympicSportTV Channel, or the website,, noticed over the past week that Muffy Davis racked up one GOLD medal after another for all three handcycling events that she entered. Idaho Mountain Express Reporter, Jeff Cordes writes: “It’s a good thing the Seattle Ridge ski run named for her is called “Muffy’s […]

Summer Party 2012 Review

Over 200 Intermountain Spina Bifida Support Group members attended the annual summer party on Saturday, August 18, 2012 at the Gene Fullmer Recreation Center in West Jordan. Jeff Burley of Salt Lake County Adaptive Recreation, the event’s primary sponsor, arranged for: catering from Joe Morley’s BBQ and Coca-Cola; wheelchair tennis with Coach Dean Oba of […]

Killpack Family Gets Approval From Insurance For Fetal Surgery!!

Thank you to all those who wrote emails and called EMI or commented on abc4’s website. Read/watch the amazing follow-up story to the Killpack Family’s fight with Educator’s Mutual. One more news story on this on KUTV:

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Help the Killpack Family

Some of you may know the Killpack family in our support group. They have three children including their son, Davey with Spina Bifida. Now they are expecting their fourth, a girl who also has SB. They have been pursuing fetal surgery and they left for Houston 11 days ago. In that time their insurance has […]

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Becca Goeckeritz Speaks at Education Night

Becca Goeckeritz was involved in an auto/pedestrian accident when she was 15 months old which left her paralyzed from the waist down. Although she does not have spina bifida, as a child she was seen at the Spina Bifida clinic because of the holistic care she needed. In 2007 Becca was crowned Ms. Wheelchair Utah, […]

Edwin Oba Wins National Award

Wheelchair Tennis coach, Edwin Oba (who has spina bifida) received an award from the United States Tennis Association recently. Read the following ARTICLE from the Salt Lake Tribune on Utah’s own Coach Oba!