Primary Children’s to Host Spina Bifida Education Days

Saturday, October 5, 2013 – Save the date!! This year the Spina Bifida Association is hosting regional Spina Bifida Education Days in five locations throughout the United States. Primary Children’s Medical Center, in our own Salt Lake City will be one of those select locations!! The Intermountain Spina Bifida Support Group is working together with […]

Muffy Davis Wins Three Paralympic Golds in London

Those following the YouTube ParalympicSportTV Channel, or the website, www.muffydavis.com, noticed over the past week that Muffy Davis racked up one GOLD medal after another for all three handcycling events that she entered. Idaho Mountain Express Reporter, Jeff Cordes writes: “It’s a good thing the Seattle Ridge ski run named for her is called “Muffy’s […]

Summer Party 2012 Review

Over 200 Intermountain Spina Bifida Support Group members attended the annual summer party on Saturday, August 18, 2012 at the Gene Fullmer Recreation Center in West Jordan. Jeff Burley of Salt Lake County Adaptive Recreation, the event’s primary sponsor, arranged for: catering from Joe Morley’s BBQ and Coca-Cola; wheelchair tennis with Coach Dean Oba of […]

Becca Goeckeritz Speaks at Education Night

Becca Goeckeritz was involved in an auto/pedestrian accident when she was 15 months old which left her paralyzed from the waist down. Although she does not have spina bifida, as a child she was seen at the Spina Bifida clinic because of the holistic care she needed. In 2007 Becca was crowned Ms. Wheelchair Utah, […]

Carrier Donated to Support Group

Our support group has recently received a wonderful donation! Scout, Jonathan Knudsen created a carrier for his Eagle Project. This carrier was made specifically for Mitch Fennemore, a young man with spina bifida, in his troop so that he could participate in their hikes. The troop nick-named the carrier the Mitch-Mobile. This great carrier is […]

Ryan Nelson on his way to the University of Illinois

Jordan High School Senior, Ryan Nelson will be graduating this Spring. Born with spina bifida, he is a member of the nationally ranked Utah Junior Wheelin’ Jazz team. He is also a top five national junior ranked wheelchair tennis player! Read the ARTICLE from the Salt Lake Tribune to learn more about Ryan and his […]

Annual Education Night

Primary Children’s Medical Center, together with the Intermountain Spina Bifida Support Group Invite you to our Annual Education Night Thursday, March 22, 2012 7:00 pm 3rd Floor, Auditorium   Attend our Education Night! Meet with other parents, share ideas, participate in our question/answer forum and be inspired! We will be talking about transitions. Adults and […]

SIBS Day: A Workshop for Super Important Brothers and Sisters

Saturday, March 3, 2012 10:00 am to 2:00 pm Primary Children’s Medical Center 3rd Floor North End Primary Children’s offers the SIBS workshop twice a year.  This workshop is from brothers and sisters ages 5 to 17 who have a sibling with a chronic medical condition or disability. This workshop provides a place where children […]

Connect: A workshop especially for kids with chronic illness

Primary Children’s is hosting a workshop for kids, ages 7 to 19 with chronic illnesses.  The workshop is a great place for them to connect with others and learn life skills. This workshop has been highly recommended for children or teens with spina bifida! Saturday, April 28, 2012 Primary Children’s Medical Center 10:00 am – […]

Walk and Roll Activity in Review

We had a great turn out for our Walk and Roll Activity and Picnic.  Thank you to all who were able to make it!  A special thanks goes to Jadon Scholes, a scout who put the entire event together for his Eagle Project.  Watch for Local Mom’s Nights coming in October and Bowling coming in […]