Wheelin’ Jazz Celebrity Game

How’d you like to see 7’6” former NBA player, Shawn Bradley, take on 4’3” Wheelchair Basketball Hall of Famer Mike Schlappi?!?! We invite all to attend the 3rd annual Wheelin’ Jazz Celebrity Game. Mention that Intermountain Spina Bifida Support Group referred you and the support group receives a portion of ticket proceeds. Here’s the info […]

SB interview on disability-specific radio show

Disability-specific radio show host Dan Windheim of Rockland World Radio recently contacted utahspinabifida.org ahead of an interview with Julie Katherine, a 22-year old college graduate with Spina Bifida. Following the interview, Dan sent over the archive link. To hear Dan Windheim’s interview with Julie, click here. To hear Dan Windheim’s other interviews on disabilities and […]

Annual Education Night!

Come to our Annual Education Night! Take this opportunity to socialize with other parents and participate in an open discussion with a panel of experts.  We will be addressing Social and Recreational Issues related to Spina Bifida. Primary Children’s Medical Center – Auditorium, 3rd Floor Thursday, April 7th, 2011 7:00pm All parents and teenagers are […]

38th Annual SBA National Conference

Please join the Spina Bifida Association (SBA) for the 38th National Conference to be held at the Disneyland Hotel (Anaheim, CA) from June 26 – June 29, 2011. Children and adults with Spina Bifida, their families, physicians, nurses, and other clinicians have the unique opportunity to gain information on the latest medical care and network […]

SB on ABC: Extreme Makeover Home Edition

Season 8, Episode 12 of Extreme Makeover Home Edition aired January 2, 2011 and featured the Grommesh Family of Moorhead, Minnesota. Ten-year old Garrett has Spina Bifida and is full of enthusiasm for life. His parents established Hope Inc, a non profit that provides fun health and recreation for children in wheelchairs. From ABC.COM: “Garrett […]

PCMC Coordinators – transitions

Many Intermountain Spina Bifida Support Group members visit the Spina Bifida Clinic at Primary Children’s Medical Center in Salt Lake City. PCMC’s liason with the ISB support group, Tamara Atwood, will be leaving in February 2011 and Nina Goldstein will be taking her place. During the transition, they offered up for blog readers a few […]

Ryan Nelson – New Era Article Feature

Wheelchair athlete, Ryan Nelson is featured in the January 2011 LDS Youth Magazine, New Era. Check it out by following this link: http://lds.org/bc/content/shared/content/english/pdf/magazines/new-era/2011/01/NE_2011_01_13___09641_000_015.pdf

Spina Bifida University

It’s National Spina Bifida Awareness Month!  During this special month the *Spina Bifida Association website (www.sbaa.org) is offering FREE online seminars on a variety of topics.  This program is called SBU or Spina Bifida Univerisity.  Scroll down to the bottom of the page to find out how to participate. The following seminars on Education and […]