Zumba Benefit for Spina Bifida

Come join for a fun night of Zumba Saturday October 13, 6-730!!!!! $5 gets you 1.5 hours of Zumba and a raffle ticket for the chance to win awesome prizes! All the money made will be split between the Utah SB Chapter as well as Educational Materials to help educate families on the option of […]

Muffy Davis Wins Three Paralympic Golds in London

Those following the YouTube ParalympicSportTV Channel, or the website, www.muffydavis.com, noticed over the past week that Muffy Davis racked up one GOLD medal after another for all three handcycling events that she entered. Idaho Mountain Express Reporter, Jeff Cordes writes: “It’s a good thing the Seattle Ridge ski run named for her is called “Muffy’s […]

Summer Party 2012 Review

Over 200 Intermountain Spina Bifida Support Group members attended the annual summer party on Saturday, August 18, 2012 at the Gene Fullmer Recreation Center in West Jordan. Jeff Burley of Salt Lake County Adaptive Recreation, the event’s primary sponsor, arranged for: catering from Joe Morley’s BBQ and Coca-Cola; wheelchair tennis with Coach Dean Oba of […]

Killpack Family Gets Approval From Insurance For Fetal Surgery!!

Thank you to all those who wrote emails and called EMI or commented on abc4’s website. Read/watch the amazing follow-up story to the Killpack Family’s fight with Educator’s Mutual. http://www.abc4.com/news/local/story/Family-beats-insurance-company-for-babys-surgery/wOjzArdLpkOJDxPVZmQnqQ.cspx One more news story on this on KUTV: http://kutv.com/news/top-stories/stories/vid_1126.shtml

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Help the Killpack Family

Some of you may know the Killpack family in our support group. They have three children including their son, Davey with Spina Bifida. Now they are expecting their fourth, a girl who also has SB. They have been pursuing fetal surgery and they left for Houston 11 days ago. In that time their insurance has […]

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SIBS Day: A Workshop for Super Important Brothers and Sisters

Saturday, March 3, 2012 10:00 am to 2:00 pm Primary Children’s Medical Center 3rd Floor North End Primary Children’s offers the SIBS workshop twice a year.  This workshop is from brothers and sisters ages 5 to 17 who have a sibling with a chronic medical condition or disability. This workshop provides a place where children […]

New SB Video Series – Children’s Hospital of Philadelphia

The Children’s Hospital of Philadelphia recently released a new Spina Bifida video series, covering the condition and the options expectant mothers have, including the breakthrough procedure that was part of the MOMS study. Click here to view the complete video series. Here is the hospital’s YouTube video which currently leads their Youtube channel.     […]

You’re invited to a Walk & Roll 5K Benefit

  Join Us & Invite Your Family & Friends to the 5K Benefit Walk & Roll at Liberty Park   A Joint Benefit for the Intermountain Spina Support Group & the Huntsman Cancer Institute Sponsored by Bula     July 4, 2011, 8:00am     Liberty Park in Salt Lake City 600 East 1300 South, […]

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Meet Aimee

The following is an interview with Aimee Vargas, a teenager with spina bifida.  This is also an introduction of her, because she will be writing for our blog on a regular basis! 1. Aimee, tell me about yourself. I am Aimee Vargas from Springville Utah. I am sixteen years old going into my senior year. […]

MOMS Study on KSL

The MOMS Study was recently featured on KSL, reporting the results.  Read the feature here. Or watch the story below.       Video Courtesy of KSL.com

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