SB interview on disability-specific radio show

Disability-specific radio show host Dan Windheim of Rockland World Radio recently contacted utahspinabifida.org ahead of an interview with Julie Katherine, a 22-year old college graduate with Spina Bifida. Following the interview, Dan sent over the archive link. To hear Dan Windheim’s interview with Julie, click here. To hear Dan Windheim’s other interviews on disabilities and […]

Accessibility Design

Looking for ways to modify your home and make it more accessible?  The Hall family recently built an accessible home.  Ilene shares how an organization called ASSIST was useful to them. ASSIST Inc is a non-profit Community Design Center that provides architectural design, community planning and development assistance to non-profit and community groups, and housing […]

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Shriners Hospital – An Excellent Resource for Children with Spina Bifida

There are only 22 Shriners Hospitals in the world and Salt Lake City is blessed to be home to one of them. Shriners Hospitals are dedicated to give specialty care to children with needs in Orthopedics, Burn Care, Spinal Chord Injury and Cleft Lip and Cleft Palate. The care given is free to families. Income […]

SB on ABC: Extreme Makeover Home Edition

Season 8, Episode 12 of Extreme Makeover Home Edition aired January 2, 2011 and featured the Grommesh Family of Moorhead, Minnesota. Ten-year old Garrett has Spina Bifida and is full of enthusiasm for life. His parents established Hope Inc, a non profit that provides fun health and recreation for children in wheelchairs. From ABC.COM: “Garrett […]

PCMC Coordinators – transitions

Many Intermountain Spina Bifida Support Group members visit the Spina Bifida Clinic at Primary Children’s Medical Center in Salt Lake City. PCMC’s liason with the ISB support group, Tamara Atwood, will be leaving in February 2011 and Nina Goldstein will be taking her place. During the transition, they offered up for blog readers a few […]

Diapering Older Children

A family in our support group with a teenager shares some helpful diapering tips for older kids: Our son uses 2 kinds of diapers (both are made by Tranquility): – “All Through The Night” have tabs and hold more liquid – “Premium Overnight” are like pull-ups and are more comfortable We have also used the […]

Kindermusik

A Great Opportunity to Encourage and Enjoy Your Child’s Development Have you heard about Kindermusik?  Kindermusik is a music and movement program for infants, toddlers, and preschoolers, accompanied by a parent or caregiver. From the kindermusik website: In class, you play, listen, sing, move, dance, and giggle with your child. It’s fun. Lots of fun. But […]

Back to School: Parent Letter

I found this great idea on www.spinabifidakids.blogspot.com.  There is so much to read on this site.  If you haven’t discovered it yet, take a look! As our children with spina bifida start school, sometimes other children in the class have questions.  Often their parents have just as many questions, but are not sure what to […]

Physical Education (P.E.)

As school begins, we welcome new challenges for our children. One of the more difficult challenges can be how to handle P.E. or Phyisical Education.  No matter if a child uses a walker, canes or a wheelchair, some anxiety can be expected for both parent and child.  How can we work with teachers and staff […]

Medical Bracelets

Have you ever thought about getting a medical bracelet for your child? Medical bracelets are a great way to communicate a medical condition quickly and effectively.  One of our families (in our support group) decided that the medical bracelet was a worthwhile option for them.  Their daughter with spina bifida wears her bracelet on a […]