Wheelin’ Jazz Celebrity Game

How’d you like to see 7’6” former NBA player, Shawn Bradley, take on 4’3” Wheelchair Basketball Hall of Famer Mike Schlappi?!?! We invite all to attend the 3rd annual Wheelin’ Jazz Celebrity Game. Mention that Intermountain Spina Bifida Support Group referred you and the support group receives a portion of ticket proceeds. Here’s the info […]

SB interview on disability-specific radio show

Disability-specific radio show host Dan Windheim of Rockland World Radio recently contacted utahspinabifida.org ahead of an interview with Julie Katherine, a 22-year old college graduate with Spina Bifida. Following the interview, Dan sent over the archive link. To hear Dan Windheim’s interview with Julie, click here. To hear Dan Windheim’s other interviews on disabilities and […]

SB on ABC: Extreme Makeover Home Edition

Season 8, Episode 12 of Extreme Makeover Home Edition aired January 2, 2011 and featured the Grommesh Family of Moorhead, Minnesota. Ten-year old Garrett has Spina Bifida and is full of enthusiasm for life. His parents established Hope Inc, a non profit that provides fun health and recreation for children in wheelchairs. From ABC.COM: “Garrett […]

PCMC Coordinators – transitions

Many Intermountain Spina Bifida Support Group members visit the Spina Bifida Clinic at Primary Children’s Medical Center in Salt Lake City. PCMC’s liason with the ISB support group, Tamara Atwood, will be leaving in February 2011 and Nina Goldstein will be taking her place. During the transition, they offered up for blog readers a few […]

Ryan Nelson – New Era Article Feature

Wheelchair athlete, Ryan Nelson is featured in the January 2011 LDS Youth Magazine, New Era. Check it out by following this link: http://lds.org/bc/content/shared/content/english/pdf/magazines/new-era/2011/01/NE_2011_01_13___09641_000_015.pdf

Meet Missy

The following is an interview with Cindy Cowley, Missy’s mother. Q: Tell us about Missy and your family. A: Jesse and I were married in 1999. We tried to have a baby for 6 long years. Finally our prayers were answered in August of 2005. We were going to have a baby. That December, through […]

Meet Sue Thompson

The following is an interview with Sue Thompson, a member of our Spina Bifida community.  She is an inspiration and her interview is full of great insights. Q: Tell us about yourself. A: I was born in Pocatello, Idaho in 1949.  Within 2 weeks I was brought to SLC Primary Children’s Hospital and assigned to […]

Living with Spina Bifida section

One of the sections of UtahSpinaBifida.org is entitled, “Living with Spina Bifida.” This section features videos from the Spring 2010 activity, “Transition into Adulthood Begins in Infancy,” hosted by the Intermountain Spina Bifida Support Group and the Spina Bifida Clinic at Primary Children’s Medical Center. Parents and specialists guide you through transitions from birth through adulthood. […]

Getting A Wheelchair

Our daughter Lily is 18 months old.  We recently took her to Shriners for a Wheelchair consult and ordered her first wheelchair (pink of course).  We had such a great time watching her try out their test chair.  Take a look at a little video clip we took of her.  She caught on to the […]

Meet Brock Waidmann

Brock Waidmann, a former Utah resident, gives us a lot to be proud of.  At twelve years old Spina Bifida has not stopped him from living his dream of being an actor.  He will soon be playing the son of Paul Reiser in a new TV Series on NBC.  Read a great interview with Brock […]

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