“Everybody’s different, and different is good.”

KSL Reporter Kathy Aiken reports: Spina bifida is a birth defect in which the backbone and spinal canal do not close before birth. Sandy resident Ryan Nelson has it, but it hasn’t slowed him down. The sophomore from Brighton High School is one of the top wheelchair athletes in Utah, and a highly-ranked tennis player […]

The Coleman Family Fulfills a Dream

The Coleman family (Rachel, Aaron, Leah and Lucy) recently fulfilled a dream by running and completing a half marathon as a family. KSL reporter Kathy Aiken reports on May 17, 2010: SALT LAKE CITY — Rachel Coleman is getting ready for her daily run. Running is one of her many passions. “I love running because […]

Lance Smith fundraises for SB

High School Senior Lance Smith of Burley, Idaho presented a generous donation to the Spina Bifida Clinic and the Intermountain Spina Bifida Support Group at the Spring Education Program held on May 7, 2010.  Lance decided to raise funds through a 5K fun walk/run as his senior year project. Lance mentioned that even though there […]

Do you like to blog?

If you like to blog about your child’s journey with spina bifida, you might want to link your blog to a great collaborative blog called Spina Bifida Kids.  Along with the regular posts by multiple mother’s who have children with SB, there is a long list of spina bifida bloggers down the right column.   […]

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Welcome to Holland

By Emily Perl Kingsley, 1987.  All rights reserved. I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this…… When you’re going to have a baby, […]

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Inspiring Stories

I read this inspiring article recently.  It is full of beautiful stories, poems and insights.  Enjoy! Touching Far Different Places In My Heart

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