SB interview on disability-specific radio show

Disability-specific radio show host Dan Windheim of Rockland World Radio recently contacted ahead of an interview with Julie Katherine, a 22-year old college graduate with Spina Bifida. Following the interview, Dan sent over the archive link. To hear Dan Windheim’s interview with Julie, click here. To hear Dan Windheim’s other interviews on disabilities and […]

MOMS Study Results are in!

Many families in our support group have been waiting to hear the outcome of the MOMS study.  This month the results have been published and it looks like good news! Read the following article in the Washington Post: Study: Surgery in Womb helps babies with spina bifida. Read another article in The New York Times: […]

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SB on ABC: Extreme Makeover Home Edition

Season 8, Episode 12 of Extreme Makeover Home Edition aired January 2, 2011 and featured the Grommesh Family of Moorhead, Minnesota. Ten-year old Garrett has Spina Bifida and is full of enthusiasm for life. His parents established Hope Inc, a non profit that provides fun health and recreation for children in wheelchairs. From ABC.COM: “Garrett […]

Ryan Nelson – New Era Article Feature

Wheelchair athlete, Ryan Nelson is featured in the January 2011 LDS Youth Magazine, New Era. Check it out by following this link:

Latinos and Spina Bifida

The Salt Lake Tribune recently produced an article about Latinos and Spina Bifida. Lucy Foret, a board member for our support group, agreed to be interviewed. In the article she boldly shares her story in an effort to raise awareness for the need to take folic acid as a preventative measure before pregnancy.  I encourage […]

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Living with Spina Bifida section

One of the sections of is entitled, “Living with Spina Bifida.” This section features videos from the Spring 2010 activity, “Transition into Adulthood Begins in Infancy,” hosted by the Intermountain Spina Bifida Support Group and the Spina Bifida Clinic at Primary Children’s Medical Center. Parents and specialists guide you through transitions from birth through adulthood. […]

“Everybody’s different, and different is good.”

KSL Reporter Kathy Aiken reports: Spina bifida is a birth defect in which the backbone and spinal canal do not close before birth. Sandy resident Ryan Nelson has it, but it hasn’t slowed him down. The sophomore from Brighton High School is one of the top wheelchair athletes in Utah, and a highly-ranked tennis player […]

The Coleman Family Fulfills a Dream

The Coleman family (Rachel, Aaron, Leah and Lucy) recently fulfilled a dream by running and completing a half marathon as a family. KSL reporter Kathy Aiken reports on May 17, 2010: SALT LAKE CITY — Rachel Coleman is getting ready for her daily run. Running is one of her many passions. “I love running because […]

Jr. Wheelin’ Jazz play in national wheelchair basketball tourney

From  The 2009-10 season marks the first year that an official Juniors team from Utah [competes] on the national level. Members of the Wheelin’ Jazz adult team cheered on the newly formed Jr. Wheelin’ Jazz team at the National Wheelchair Basketball Association National Championship Tournament, held in Denver, Colorado, April 7-10, 2010. Five of the […]