19-Year Old with Spina Bifida Uses His Wheelchair as a BMX Bike

  Aaron Fotheringham of Sandy, Utah was recently featured in the Deseret News.  He is known for doing a backflip in his wheelchair! Click on the following link to read more about Aaron:  http://www.deseretnews.com/article/705370687/Wheelchair-becomes-19-year-olds-BMX-bike.html Watch him do his amazing trick on youtube:    

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MOMS Study on KSL

The MOMS Study was recently featured on KSL, reporting the results.  Read the feature here. Or watch the story below.       Video Courtesy of KSL.com

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MOMS Study Results are in!

Many families in our support group have been waiting to hear the outcome of the MOMS study.  This month the results have been published and it looks like good news! Read the following article in the Washington Post: Study: Surgery in Womb helps babies with spina bifida. Read another article in The New York Times: […]

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SB on ABC: Extreme Makeover Home Edition

Season 8, Episode 12 of Extreme Makeover Home Edition aired January 2, 2011 and featured the Grommesh Family of Moorhead, Minnesota. Ten-year old Garrett has Spina Bifida and is full of enthusiasm for life. His parents established Hope Inc, a non profit that provides fun health and recreation for children in wheelchairs. From ABC.COM: “Garrett […]

Ryan Nelson – New Era Article Feature

Wheelchair athlete, Ryan Nelson is featured in the January 2011 LDS Youth Magazine, New Era. Check it out by following this link: http://lds.org/bc/content/shared/content/english/pdf/magazines/new-era/2011/01/NE_2011_01_13___09641_000_015.pdf

Latinos and Spina Bifida

The Salt Lake Tribune recently produced an article about Latinos and Spina Bifida. Lucy Foret, a board member for our support group, agreed to be interviewed. In the article she boldly shares her story in an effort to raise awareness for the need to take folic acid as a preventative measure before pregnancy.  I encourage […]

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Healing Horses

An article in the Deseret News recently featured a therapeutic riding organization for children with disabilities.  The non-profit organization, called Therapeutic Assets, is run from Buffalo Ranch in Farmington, Utah. To read the article click here. I don’t know how much they work with children with spina bifida or how their services compare to other […]

“Everybody’s different, and different is good.”

KSL Reporter Kathy Aiken reports: Spina bifida is a birth defect in which the backbone and spinal canal do not close before birth. Sandy resident Ryan Nelson has it, but it hasn’t slowed him down. The sophomore from Brighton High School is one of the top wheelchair athletes in Utah, and a highly-ranked tennis player […]

The Coleman Family Fulfills a Dream

The Coleman family (Rachel, Aaron, Leah and Lucy) recently fulfilled a dream by running and completing a half marathon as a family. KSL reporter Kathy Aiken reports on May 17, 2010: SALT LAKE CITY — Rachel Coleman is getting ready for her daily run. Running is one of her many passions. “I love running because […]

Lance Smith fundraises for SB

High School Senior Lance Smith of Burley, Idaho presented a generous donation to the Spina Bifida Clinic and the Intermountain Spina Bifida Support Group at the Spring Education Program held on May 7, 2010.  Lance decided to raise funds through a 5K fun walk/run as his senior year project. Lance mentioned that even though there […]