Park and Playground Online Seminar

Michael Workman, the Physical Therapist from our Spina Bifida Clinic, has posted a wonderful seminar on his website.  He teaches about how we can get our kids to play actively outdoors, as well as help them physically improve at the park and playground.  This is one of my favorite things Mike does.  He taught us […]

Authors bringing therapy horses and disabled children together

Authors Stephonie Williams and Jennifer Clark An article in the Deseret News recently featured two sister authors who have created a charity for the disabled.  They have co-written a book called “Mark of Royalty.” With their new book on their minds, they created a charity that brings together therapeutic riding and disabled children.  They plan […]

Shriners Hospital – An Excellent Resource for Children with Spina Bifida

There are only 22 Shriners Hospitals in the world and Salt Lake City is blessed to be home to one of them. Shriners Hospitals are dedicated to give specialty care to children with needs in Orthopedics, Burn Care, Spinal Chord Injury and Cleft Lip and Cleft Palate. The care given is free to families. Income […]

Connect with U of U TRAILS – adaptive sports

The University of Utah’s Rehabilitation Center outreach program known as TRAILS continues to host adaptive recreational activities for many with Spina Bifida. TRAILS stands for Therapeutic Recreation And Independent Lifestyles. Their mission is “to promote health and active lifestyles for individuals with spinal cord injury or disease through the educational, social, and psychological components of […]

Living with Spina Bifida section

One of the sections of UtahSpinaBifida.org is entitled, “Living with Spina Bifida.” This section features videos from the Spring 2010 activity, “Transition into Adulthood Begins in Infancy,” hosted by the Intermountain Spina Bifida Support Group and the Spina Bifida Clinic at Primary Children’s Medical Center. Parents and specialists guide you through transitions from birth through adulthood. […]

Healing Horses

An article in the Deseret News recently featured a therapeutic riding organization for children with disabilities.  The non-profit organization, called Therapeutic Assets, is run from Buffalo Ranch in Farmington, Utah. To read the article click here. I don’t know how much they work with children with spina bifida or how their services compare to other […]

Shopping for a walker

One of our families needs to buy a new walker for their 5 year old daughter, Grace.  Before buying, they would like Grace to try each walker to see which is most comfortable for her.  The two choices recommended by Mike at PCMC are the Nurmi Neo or the Crocodile.  She will be needing a […]

Hippotherapy

Hippotherapy has been a wonderful experience for our daughter Rose, who has spina bifida.  When she was born five years ago, we began participating in Early Intervention immediately.  We moved to Utah County shortly after she was born, and when she was 2 ½ we had an opportunity to sign her up for hippotherapy at […]

Learning to Sit

Learning to sit …a process that requires so many parts of the body to work together. I never realized all that it takes to learn to sit up. For some it takes more time to learn to sit independently than others. For Emylie she began to sit without support around 15 months and mastered it by […]