New SB Video Series – Children’s Hospital of Philadelphia

The Children’s Hospital of Philadelphia recently released a new Spina Bifida video series, covering the condition and the options expectant mothers have, including the breakthrough procedure that was part of the MOMS study. Click here to view the complete video series. Here is the hospital’s YouTube video which currently leads their Youtube channel.     […]

MOMS Study Results are in!

Many families in our support group have been waiting to hear the outcome of the MOMS study.  This month the results have been published and it looks like good news! Read the following article in the Washington Post: Study: Surgery in Womb helps babies with spina bifida. Read another article in The New York Times: […]

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Latinos and Spina Bifida

The Salt Lake Tribune recently produced an article about Latinos and Spina Bifida. Lucy Foret, a board member for our support group, agreed to be interviewed. In the article she boldly shares her story in an effort to raise awareness for the need to take folic acid as a preventative measure before pregnancy.  I encourage […]

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Living with Spina Bifida section

One of the sections of UtahSpinaBifida.org is entitled, “Living with Spina Bifida.” This section features videos from the Spring 2010 activity, “Transition into Adulthood Begins in Infancy,” hosted by the Intermountain Spina Bifida Support Group and the Spina Bifida Clinic at Primary Children’s Medical Center. Parents and specialists guide you through transitions from birth through adulthood. […]

For Pregnant Mothers

I found some wonderful advice to pregnant mothers on a very good website for the International Federation for Spina Bifida and Hydrocephalus.  The following questions/ideas are addressed.  Click here to explore the advice/answers. -I am pregnant with a child with Spina Bifida and/or Hydrocephalus.  The child I am expecting has a disability, what now? -So […]

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