Primary Children’s Hospital is offering SIBS Day: A Workshop for Super Important Brothers and Sisters. Saturday, November 16, 2013 10am-2pm 3rd Floor, Primary Children’s Outpatient Services at the Riverton Campus #3 Yellow Entrance, Northwest Corner of Campus “Join us for SIBS Day – a workshop for brothers and sisters ages 5-17 who have a sibling […]

Agenda for the SBA Education Day held in Salt Lake

Annual Education Night

Primary Children’s Medical Center, together with the Intermountain Spina Bifida Support Group Invite you to our Annual Education Night Thursday, March 22, 2012 7:00 pm 3rd Floor, Auditorium   Attend our Education Night! Meet with other parents, share ideas, participate in our question/answer forum and be inspired! We will be talking about transitions. Adults and […]

SIBS Day: A Workshop for Super Important Brothers and Sisters

Saturday, March 3, 2012 10:00 am to 2:00 pm Primary Children’s Medical Center 3rd Floor North End Primary Children’s offers the SIBS workshop twice a year.  This workshop is from brothers and sisters ages 5 to 17 who have a sibling with a chronic medical condition or disability. This workshop provides a place where children […]

Connect: A workshop especially for kids with chronic illness

Primary Children’s is hosting a workshop for kids, ages 7 to 19 with chronic illnesses.  The workshop is a great place for them to connect with others and learn life skills. This workshop has been highly recommended for children or teens with spina bifida! Saturday, April 28, 2012 Primary Children’s Medical Center 10:00 am – […]

S.I.B.S Day – A Workshop for brothers and sisters

S.I.B.S Day is coming around again at Primary Children’s.  This is a workshop offered to brothers and sisters ages 5-17 who hava a sibling with a chronic illness or disability.  The workshop provides a place where children can express themselves, learn from others and find new ways to cope. Saturday October 15th, 2011 10am – […]

New SB Video Series – Children’s Hospital of Philadelphia

The Children’s Hospital of Philadelphia recently released a new Spina Bifida video series, covering the condition and the options expectant mothers have, including the breakthrough procedure that was part of the MOMS study. Click here to view the complete video series. Here is the hospital’s YouTube video which currently leads their Youtube channel.     […]

Annual Education Night!

Come to our Annual Education Night! Take this opportunity to socialize with other parents and participate in an open discussion with a panel of experts.  We will be addressing Social and Recreational Issues related to Spina Bifida. Primary Children’s Medical Center – Auditorium, 3rd Floor Thursday, April 7th, 2011 7:00pm All parents and teenagers are […]

S.I.B.S Day at Primary Children’s

Lily and two of her S.I.B.S S.I.B.S Day is offered twice a year (March and October) at Primary Children’s Medical Center for Super Important Brothers and Sisters.  It is a workshop for siblings (ages 5-17) of children with disabilities or chronic illnesses. The following is information straight from the Primary Children’s Website: The Family Support […]

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PCMC Coordinators – transitions

Many Intermountain Spina Bifida Support Group members visit the Spina Bifida Clinic at Primary Children’s Medical Center in Salt Lake City. PCMC’s liason with the ISB support group, Tamara Atwood, will be leaving in February 2011 and Nina Goldstein will be taking her place. During the transition, they offered up for blog readers a few […]