New SB Video Series – Children’s Hospital of Philadelphia

The Children’s Hospital of Philadelphia recently released a new Spina Bifida video series, covering the condition and the options expectant mothers have, including the breakthrough procedure that was part of the MOMS study. Click here to view the complete video series. Here is the hospital’s YouTube video which currently leads their Youtube channel.     […]

Meet Aimee

The following is an interview with Aimee Vargas, a teenager with spina bifida.  This is also an introduction of her, because she will be writing for our blog on a regular basis! 1. Aimee, tell me about yourself. I am Aimee Vargas from Springville Utah. I am sixteen years old going into my senior year. […]

ALL ABOUT ME (and my shunt)

Book Review: ALL ABOUT ME (and my shunt) by Terri Rice Bellush I found this short review online: A young girl, Janet, talks about her shunt and how it keeps her feeling well. Colorful crayon illustrations and simple language make this a perfect story for a child with a shunt, to explain shunts to siblings […]