New SB Video Series – Children’s Hospital of Philadelphia

The Children’s Hospital of Philadelphia recently released a new Spina Bifida video series, covering the condition and the options expectant mothers have, including the breakthrough procedure that was part of the MOMS study. Click here to view the complete video series. Here is the hospital’s YouTube video which currently leads their Youtube channel.     […]

PCMC Coordinators – transitions

Many Intermountain Spina Bifida Support Group members visit the Spina Bifida Clinic at Primary Children’s Medical Center in Salt Lake City. PCMC’s liason with the ISB support group, Tamara Atwood, will be leaving in February 2011 and Nina Goldstein will be taking her place. During the transition, they offered up for blog readers a few […]

Living with Spina Bifida section

One of the sections of UtahSpinaBifida.org is entitled, “Living with Spina Bifida.” This section features videos from the Spring 2010 activity, “Transition into Adulthood Begins in Infancy,” hosted by the Intermountain Spina Bifida Support Group and the Spina Bifida Clinic at Primary Children’s Medical Center. Parents and specialists guide you through transitions from birth through adulthood. […]

Lance Smith fundraises for SB

High School Senior Lance Smith of Burley, Idaho presented a generous donation to the Spina Bifida Clinic and the Intermountain Spina Bifida Support Group at the Spring Education Program held on May 7, 2010.  Lance decided to raise funds through a 5K fun walk/run as his senior year project. Lance mentioned that even though there […]

A Good Distraction

On an unexpectedly long day at the Hospital I discovered a great distraction for our 5 year old.  They are called Sticky Mosaics.  They are a mess-free craft that has the power to keep kids hands and minds busy during a lot of wait time.  I found a small set at the gift shop at […]